Since I started taking Xyrem about 2 and a half weeks ago I have already started to see some improvement. I’m still on a very low dosage and won’t be up to the full dose for another couple months but I feel like it is going to work pretty well for me. There have been a few instances where I have noticed that I remembered things that I normally wouldn’t have. A few nights ago my wife asked me to do something the following night and I remembered to do it the next day without being reminded, that is something that I normally don’t do.
When taking Xyrem I also noticed that if I try to get more than 8 hours of sleep I am more tired than if I set my alarm to get up exactly 4 hours after my last dose. That is what my neurologist recommended to do and it helps. Xyrem is normally out of your system 2-4 hours after you take it. I noticed that after it wears off I spend the rest of the time dreaming, there have been times when I woke up around 6:00 after taking a dose at 2 then trying to sleep for another hour. I noticed that the last hour I had been dreaming the entire time even if I only dozed off for a few minutes at a time. I also noticed that I have more energy and am less tired during the day, which is pretty awesome. I just wish I could start taking a higher dosage sooner, but I understand that it isn’t a good idea to do so, so I will wait patiently until my neurologist determines it is safe for me to be on the regular dosage. I will keep you posted on how well it is working.