A little while ago I posted about a book on narcolepsy that was free for download on January 1st. It is called “Wide Awake And Dreaming” by Julie Flygare, I finally finished reading it the other day. It is about the author’s struggles with narcolepsy and is pretty informative on the subject, I would definitely recommend reading it.
I have been taking 200mg of Provigil for about 2 months now, my memory isn’t the greatest but that’s a pretty good estimate. Currently I don’t feel like it is working at all so I am anxiously waiting my next neurologist appointment in a few weeks. I have also decided to go off of Prozac completely, I feel like it is making me more tired and I was prescribed it before being diagnosed with narcolepsy and was prescribed it for something I was misdiagnosed with. I was taking 60mg and have slowly been weaning myself down for the passed week. Hopefully I will be put on something else that works better, right now I would prefer not to be on anything because I feel like the medication is just making me feel worse. I feel more “spacey” and zombie like than I did when I wasn’t on anything.
I am having my neuropsych evaluation on the 21st so hopefully I can take something that will help with my ADD as well because it is more frustrating to me than the narcolepsy itself. I am not sure if anyone else has had this problem but I feel like I am either overly hyper or a zombie, and more often I feel like the latter. It is like my brain either wants to function at full force or not at all, it is extremely irritating because some times I feel like I am in a total fog and can’t think, even the easiest of tasks seem difficult and I can’t form a complete thought or make a decision if my life depended on it, plus I constantly forget things. The most annoying part is that most people just plain don’t understand the condition and that there are very limited resources and information available.